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Development of the PIFI and PIDI

Development, validation and evaluation of the Pediatric IBD Fatigue Index (PIFI), and the Pediatric IBD Disability Index (PIDI)

Site Principal Investigator:

Anthony Otley, MD, MSc, FRCPC

Division of Gastroenterology, Department of Pediatrics

IWK Health and Dalhousie University

Sponsor: Shaare Zedek Medical Center, Jerusalem, Israel

Inclusion/Exclusion criteria

  • Diagnosed with Inflammatory Bowel Disease (IBD)
  • Between two and 18 years old.

Purpose: To develop a disease specific pediatric IBD fatigue index (PIFI) and disability index (PIDI).

IBD can have both physical and emotional effects, like tiredness (fatigue) and limitations in daily activities (disability). While there are tools to measure fatigue and disability in adults with IBD, none are available for children and adolescents with IBD. The researchers want to be able to measure fatigue and disability in children and adolescents with IBD so that it can be better treated and improved. This study will be conducted in three phases and is currently in the first phase.

Approximately 150 children and teenagers who have IBD and are between the ages of 2 and 18 years will be asked to participate in the study at hospitals in: Canada, the United States, the United Kingdom, Scotland, Ireland, and Israel. Caregivers of children aged 2-12 years old, will also be asked to take part.

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